GoFundMe

Several weeks ago, a friend from VA asked us if we minded if she set up a GoFundMe account for our family. She also has two children close together in age, and her husband had saved up money so they could hire a "Mother's Helper". Since our friend was really blessed by the help she received, she wanted to provide the same kind of help for us. Chuck and I were both quite floored by this generous idea! We are really humbled that people would want to give financially to make our (mostly my) days more manageable. Last week we received access to the account, and were able to start having help come. It's already been amazing! WE ARE SO THANKFUL! 

Since all the donors have been anonymous, we are unable to thank each giver, but our hearts so deeply desire to say THANK YOU to each one. THANK YOU for giving so generously and graciously! Several weeks ago Chuck and I had no idea all the financial issues we'd run into due to both of our kid's health issues. We also had no idea we'd need to take the kids separately to so many appointments, which created a need for a sitter. Our friend had no way of knowing all of this either, but we all know who did. HE always knows. And HE always, ALWAYS provides! Thank you Jesus! And thank you friends for giving in a way that has blessed us straight to our hearts.    


Happy girl!

Getting scanned for her helmet

As for sweet little Basye. Some have been asking questions about what's been happening with her. It's a long story, but the short of it is she has Torticollis and Plagiocephaly. These conditions go hand-in-hand. With the Torticollis, the muscles on one side of her neck are shorter so she tends to only turn her head in one direction. This also means she lays on the same side of the back of her head- which has caused flattening- thus Plagiocephaly. 

She has been going to physical therapy for her neck for over a month now. Basye also see's a neurosurgeon, and has recently been referred to a Prosthetics and Orthotics specialist. We love all of our medical staff! God has given us the sweetest, most helpful and encouraging people to work with little Bae. And she is such a trooper about all of her appointments. In the picture above, she was getting her head scanned. The results were then sent to Boston Children's Hospital, which I think is pretty cool! 

The team of people that have been working with Basye have recommended we get her into a helmet which will mold the back of her head properly. She will have to wear her helmet 23 hours a day until she's at least 1 year old. She turned 4 months today, so we'll be doing the helmet thing for about 8 months. Mama ordered her the purple shiny helmet. ;) We are still waiting on insurance issues, but hopefully she'll get it within the next week and a half. 

All of these appointments have been very costly, but last week I was guided to a program through the State called Early Intervention that could help cover some of her medical expenses. We are still waiting on someone to come out and evaluate her condition. It would be a huge blessing if we got approved for EI! It would also mean a physical therapist would come out to our HOME for free every week! Would be so awesome!

All things considered, we are all doing very well, just a bit overwhelmed! Jase is doing beautifully, and we praise God for His complete healing! Praise the Name of Jesus!  

Baby Girl is 4 months old!
 
THANK YOU again to our GoFundMe friends! We just CAN NOT THANK YOU enough! We are so, so grateful for your amazing gift to us! Glory to God!!! 

2 comments:

Unknown said...

Bayse is getting so big! She is such a cutie too!

Praise the Lord for awesome blessings!

Unknown said...

This is awesome! And she is sooo cute!!